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Becoming a research partner with Better Conversations with Parkinson's
Get involved: shape our research
We are working closely with people who have experience of Parkinson’s, their families, partners, carers, and speech and language therapists.
Our aims for working together
We want everyone to:
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Help lead and shape the research
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Feel heard, respected, and supported
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Have equal say in as many decisions as possible
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Take part in a way that suits them
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Enjoy working with us
We have three friendly facilitators to help run meetings and support you to be involved. We aim to share the impact of what we are doing together in an update every 6 months.
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Please do give us feedback at any point on what we can improve.
How you can join in
We welcome you to contribute in any way that you feel comfortable. Please chat with us about any support that might help you to take part.
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Our welcome event gives information about the project and working together. The recording from 11th November 2025 can be found by clicking the link below:
We would love to meet with you to talk about this research, to listen to your ideas, and to work together with you. If you are interested send an email to philippa.clay@ucl.ac.uk.
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There are two main ways of being involved:
What do you get from being involved?
Meeting others
​We make sure that there is time to chat and socialise together
Payment
We pay a small amount in recognition for your time and expertise
Motivation
You are making a difference to the future healthcare of others. People have also described taking part as therapeutic
Cake
When we meet face to face, we try and make sure there’s tea and food to fuel our thoughts and creativity!
Knowledge
You bring your expertise and, in return, gain ideas from other people living with Parkinson’s or people working in this area
Enjoyment
We try to make our groups as fun as possible